One, I was in too much pain following an inflamed vein from my iv. My arm and hand were so swollen and painful I had to take heavy medications to control the pain, and I am still struggling with it. Two, I have not spoken at any real length with my Dr about everything that was done during the surgery, what all he found, or anything like that.
What I know:
I woke up in recovery with five new holes in my lower abs; belly button, center,left and right side of pelvic area. I can't go into detail at the moment about the rest following my waking up and being discharged. (let's just say it was not good)
Endometriosis was found, adhesions removed, and everything was sent off to pathology.
I was given instructions to continue as normal the following day. Which I have sense learned was not meant for me and my type of surgery. Again, more on that later.
Thank goodness I had access to another Dr that could help me out and help me understand what was going on.
The first three days I felt amazing, no pain, and thought, "Wow, this is awesome!" day three I woke in horrible pain, arm and hand swollen so much my skin was shinny from being so tight. Phlebitis in my right arm, I was advised to take anti inflammatory meds and put on warm compresses. Later I had to see my PCP who gave me steriods to help as well and found three tiny clots in my hand from the iv damage. (My veins were too small for the 18 gauge needle they wanted to use, they failed on one hand, then went to the right hand and had to use a 20 gauge needle and it was still too big, causing some irritation, then what happened in recovery just ticked my vein off even more) Later in the day, after the ER I noticed my lower body hated me. It hurt so bad I cried thinking, it didn't work!! But I learned the Dr used a long last anastetic on my organs to keep them pain free for three days after surgery so I didn't have to use so many narcos. (no one told me that until almost two weeks after surgery)
My pathology came back with lots of endo, buried deep in my adhesions, pouche of Douglas, ovary, bladder, all over the place. The depth, severity and such suggests stage IV endometriosis (persistant, and microscopic were used to say what was inside me)
Reason I wanted to update today:
Yesterday I had six hours of pain free time. I was so excited. No narcos, just Ibuprofen 800 as needed. I woke today, with little pain, mostly surgical stuff sore. Then I took a shower and came to understanding, when I put my leg down after washing it.. NO ripping,buring searing pain came to my pelvis!!!!!!!!!!!!!!!!!!!! Holy mother of milk, I am a happy girl. So while I am still in pain, and my body still hates me, it looks like we might be on speaking terms again!
The Ugly discovered a few hours ago... kidney infection. I'm on drugs to help get rid of it. It's painful, but my kidneys are so tender that I caught it early. Things are going good, I am still in pain, I am still healing, I have a very long road ahead, but I am seeing improvements!
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